Covenant

The past week are so has just been plain old bad medically.

We adopted Cav and Fei knowing they had medical needs.

I truly think we are in some form of spiritual warfare and I wonder if it's because we are close to getting LOA for the baby.

Poor Cav's surgical site is NASTY - as in blech, it's green and oozing, it smells terribly, and then last night we changed the dressing and there was this huge yellow gelatinous thing.  Of course my sweet husband looks to me for advice.  HELLO!  I was a NICU nurse - we didn't do this!  ICK!

But truthfully, we thank God every time we change the dressing that he can't feel the end of his leg yet.

Then Thursday I got a frantic call from our pediatrician.  She had FeiFei's MRI results and she was freaked.

Luckily, I was smart enough to ask for a copy of the report which I got Friday morning.  Also the one very nice thing about having a child with dwarfism is that the parent information group is AMAZING! I didn't even have to post as I found the information I needed under old postings as well as the file section.

The reason for or Pediatrician's freak out - Fei has a narrow Formen Magnum - um all people with Achondroplasia do - HELLO McFly!  Oh sorry did I say that in my outside voice!

There are still little bits of information that are concerning and may still require surgery but really - I had my bags packed Thursday night trying to figure out how I would do Cav's surgery next Monday and fly Fei for her surgery LOL!

Another really nice thing about the dwarfism community is that it truly is small.  i emailed a mom who we met at the Ronald McDonald house at AI Dupont years ago (both our kids are on their brochure!) Her daughter just had spinal surgery and she was a great source of information.  I emailed a copy of the MRI results to the ortho that did her surgery and we will see what he thinks.

Did I mention I am a bit of a freak.  I do choose to travel for our kids care.  I have worked in the hospital and not all Dr's and not all staff are created equal.  We do have the luxury to make this choice.  It may mean scrimping here and scrapping there but I flew Brahm to DuPont why would I let anyone else do an intensely critical surgery that I don't trust with all my heart.

NEXT please . . .

Oh yeah reviewing our latest insurance bill (they have truly been fabulous) I noticed a bill for Cav's prosthetist.  Hmmm, that kid meet his deductible in about FEBRUARY!  THen I realized the problem. His prosthetist is NOT in our network.  Are you kidding me?!?!  Um, ticked does not begin to express how I feel.  Did it occur to them to tell me when they checked our eligibility for Cav's prothesis.  So another email to our surgeon's nurse.  Luckily it was for $100 shrinkers and not a $5000 leg.

So why do I share this.  Because so many blog are about the rainbow and lollipops of adoption.  The glory days.  I thought that the spiritual warfare ended when we signed on the dotted line.  I do think some of this is really has do to with our current adoption.  But my children that were so incredibly based upon God are still his favorite targets.

In addition, if you have been reading recently we have been struggling with Feifei and her China Momma.  I now have my answer as to WHY he chose her to leave everything she knew, in probably one of the best situations an orphan could find themselves in.  In China, they would never have known about her spinal stenosis (tightening) this could have potentially been life threatening.

And then I remember what He has promised us ~

I have set my rainbow in the clouds, and it will be the sign of the covenant between me and the earth.
                                                                                                                                Genesis 9:13

Our backyard

2 rainbows, 2 treasures

In awe of my son!

If you have been reading this blog then you'll remember my post here.

Well, I was mistaken in the fact that they were cutting kids at all.  Instead every Tues morning they post a list of the 25 kids that will play the following Weds game.  I originally thought perfect, all 50 boys will get playtime, as well as keeping their confidence and learning the love the game.

You guessed it - this sweet guy

DID NOT MAKE IT!  Not last week and NOT this week!

I was so upset for him.  I know for a fact that some of the other mom's have emailed the coaches and now their kids are playing.  SOOO. . . you guessed it, this mom was all ready to email the coaches.  Let them know how distructive I thought these games of rejection were to a child's psychie blah, blah, blah.

THEN this amazing young man -

taught this old momma a few lessons.

He said "Mom, I don't want a position cuz I complained, I want a position that I earned!"

"I'll ask the coaches at our next practice to see what I need to work on."

When I reminded him of a "friend" from preschool who would harass him tomorrow for not playing and that he didn't need to go to the game.  

He looked in me in the eye and said, "Mom, I am going to cheer on my school, I can handle him, he is all talk."

Alright then, my heart went from breaking for him, to so absolutely impressed with 12 year old.

And for his true friends - they were all really surprised that he didn't make the team last week and even more so this week.

Pretty amazing group of kids and I am so absolutely thrilled I get to stand to the side and watch these amazing boys become men!