Thursday, January 29, 2015

Finding Grace

God has really been working on us over the past 6 months and finally I was brought to my knees and God and I had a heart to heart.  My cries that NO - I am not going one more step forward until HE gave us answers for Cav.

We are talking on my knees,
screaming at God,

Are we to stupid to give up,
I know for a fact that YOU God sent us to this child,
but I can NOT,
do this alone.

My heart aches for this child,
he plays by himself,
he is always angry, or raging, this is no way for a child to live.
I want to see him smile God.
I want him to be able to play with the other kids.

And on, and on, and on.

And finally. . . 

Our prayers have been answered.


Am I mad as hell that the answer could be found in a bottle,
that No one else thought to try this when he first came home and raged for more hours than he didn't.

BUT I have to believe that there is a reason,
that God has buffered our boys heart.

So we are cautiously optimistic that we are on the right path.
And the change in Cav has been shocking.
Even his dad mentioned his facial features have even changed!!

We also did the MTHFR test - we haven't started treating it but Cav tested positive for both cardiac AND neurologic.  It explains MANY, MANY things including the odd smell to his urine, and even blood.  He does NOT break down folic acid AT ALL!

I tell you this because I don't want someone else to have to go through 3 years of hell trying to find an answer.

Can you see the glow!!



  1. What is it? It's not clear from your post! But I am happy to read something seems to be working. Fingers crossed that this is a big crossed hurdle for you and for him!

  2. Beautiful post ... I can see a difference in his little eyes. Perfect title for this post ... Grace ... God's grace.