About 4 months after, we went to an autism fair, and looked around, ended up with a huge stack of pamphlets and truly left more confused then when we started. It's a new language, that quite frankly I don't speak. Also because it is institutional and not organic (is that right?) he doesn't fit what people think of autism. Throw a little RAD in the mix and well, we don't have a typical child or a typical "cure."
Before I begin - I want to reiterate that deep down I believe Cav has the most potential out of all our kids. There is something about him. Everyone who meets him on his lucid days - walk away with their life changed. Seriously - at 4 he walked independently within 48 hours of receiving his new legs. Cav's special need is not, nor has it ever really been his legs, his limbs.
That being said - it has been 4 very, very long years. We have tried and failed to help him. We are weary, and as time marches on we are more and more fearful of what the future holds for this child. I am not the same person I was when we went to China to adopt him. We do Not regret the decision of bringing him home - as we know without a doubt he would have been dead 3 1/2 years ago. It's that helplessness you can never understand unless you are standing at the edge of the abyss and your child sinks lower and lower and nothing you do is working. So we look for new things, and pray, and hope.
So I spoke to one vendor at the Autism fair and although their speil sounded cool, the sticker shock alone was enough to deter me. However I took their pamphlet and went on my way. You wouldn't even believe it if I told you almost a year later that stupid pamphlet shows up time to time in my car. I keep thinking I throw it away and then a month or so later there it is again in the passenger seat.
Recently, I was talking to a friend about this program and she had heard form another friend about amazing results her sons friend had, had with this program. She then tagged me on Facebook about the same time the article was going around about early childhood neglect and how different the brains looked on MRI.
I finally decided to call and get some information. Today was our first session. We agreed to it because it has a finite end. We aren't talking open ended therapy over weeks, months and years. It's 3 weeks. 7 sessions. We also agreed because the program was invented locally, by a dad, also looking into the abyss. Desperately wanting to help his daughter. I can NOT find ANY research about this and early neglect. So I put my nursing hat on and sat down with my information, their information and came up with a hypothesis (can you tell we are in stinking science fair season LOL!)
Here goes - Gyro-stim affects the vestibular area of the brain. Ultimately it works along the principles of working the brain until fatigue so that the brain will regenerate itself the same as if we were lifting weights. Ultimately it is hoped that as the brain muscle repairs itself from the workout, it will rewire, or change the wiring. BUT and here is why I am hopeful this will work.
I found this information on nspt4kids.com (I found other sites with similar info but this one was the ~lightbulb where I could check off parts.