We spent Monday and Tuesday in Denver - I'll post later about our awesome crazy adventure LOL! BUT most importantly we met with the Amputee Clinic at Denver's Children.
We met with NINE . . yes . . 9 people in one tiny exam room plus part of our family. We let the other kids play in the waiting area and little man went back and forth between the two. We have learned along the way that having everyone meet all together means everyone is one the same page.
A Blessing
We met with the orthopedic surgeon and his PA. They also do all of the orthopedic oncology surgeries and we could tell by the time he spent with us and his overall caring demeanor.
Truly a blessing.
This was the man who looked at Cav's 3 pictures of his little baby legs contained in his original file and accurately diagnosed the Tibial Hemimilia which is a 1 in a million birth defect. This allowed us the opportunity for our family to discuss caring for an amputee BEFORE accepting his file.
We also met with a Rehab Dr (we have met her before at little man's skeletal dysplasia clinic.) and she is wonderful. She was so nice and also confirmed she wouldn't touch Cav's hands. She said he was so functional. She also said, as they were trying to figure out if he needed a wheelchair, that he would master it in no time, but she feared for everyone else's safety LOL!
Humor!
Little man and Cav are like two puppies and they were tossling all around her and I was mildly embarrassed while trying to listen to the surgeon, but she was so nice.
Grace!
We also saw 3 prosthetist and low and behold one visits down in the Springs.
Truly another blessing.
He said we can come by and he'll show all of the kids what Cav's new legs will look like.
Another blessing!
We met with NINE . . yes . . 9 people in one tiny exam room plus part of our family. We let the other kids play in the waiting area and little man went back and forth between the two. We have learned along the way that having everyone meet all together means everyone is one the same page.
A Blessing
We met with the orthopedic surgeon and his PA. They also do all of the orthopedic oncology surgeries and we could tell by the time he spent with us and his overall caring demeanor.
Truly a blessing.
This was the man who looked at Cav's 3 pictures of his little baby legs contained in his original file and accurately diagnosed the Tibial Hemimilia which is a 1 in a million birth defect. This allowed us the opportunity for our family to discuss caring for an amputee BEFORE accepting his file.
We also met with a Rehab Dr (we have met her before at little man's skeletal dysplasia clinic.) and she is wonderful. She was so nice and also confirmed she wouldn't touch Cav's hands. She said he was so functional. She also said, as they were trying to figure out if he needed a wheelchair, that he would master it in no time, but she feared for everyone else's safety LOL!
Humor!
Little man and Cav are like two puppies and they were tossling all around her and I was mildly embarrassed while trying to listen to the surgeon, but she was so nice.
Grace!
We also saw 3 prosthetist and low and behold one visits down in the Springs.
Truly another blessing.
He said we can come by and he'll show all of the kids what Cav's new legs will look like.
Another blessing!
Sooo, we will be doing surgery June 4th
He will stay in the hospital for a few days to help with pain control.
He will probably NOT be casted since he is a bit . . um . . wild! They will just use soft wraps.
This means he will be able to go swimming with the other kids by about 3 weeks.
He will fitted for his legs by 6-8 weeks.
By the time school starts HE WILL BE WALKING!!
Matthew 15:31 The people were amazed when they saw the mute speaking, the crippled made well, the lame walking and the blind seeing. And they praised the God of Israel.
Praising God with you and praying for surgery to go extremely well! Cav has come so far!!!!
ReplyDeleteI'm so happy for y'all that this meeting went so well - and y'all have a plan! Sooo beautiful!
ReplyDeleteYvette - what wonderful news for Cav!! He is going to get through the surgery exceedingly well and how wonderful that within 2-3 months he will have new legs, yippee! Then the fun will really begin.
ReplyDeleteI just love these pics of Cav! He looks SO different with longer hair and just really looks like he's growing up. Honestly, he looks so relaxed and really at home with the family. I absolutely adore the pic of Cav and Little Man!
ReplyDeleteI am so excited for Cav and will be praying for him and you!!! He is changing so much! So handsome!
ReplyDelete